Mom And Son Giraffe
  • On Feb 12, 2009
    Charles from PA Asked

    We are traveling to Disney World in June. Our son will be 26 months then. He has Down syndrome and a colostomy. I'm worried about the colostomy. Any advice about traveling w/ colostomies? Thanks, Jen and Charles

    Hi, Guys!  How exciting that you're taking your little guy to Walt Disney World! 

    Tanya and I worked together to provide the following information.  Tanya recommends that you pick up a Guest Assistance Card from guest services.  The card will allow you special consideration in terms of waiting for rides and attractions, including allowing you to bring your stroller into an attraction; providing a shaded waiting area and an alternate entrance if necessary. 

    Tanya also suggests taking full advantage of the Baby Care Centers at the theme parks.  These air conditioned areas will offer you a place to relax with your little prince, give him something to eat, and if you need to do a clothing change, it's comfortable, clean, and friendly! 

    I have worked before with people who have had colostomies, and I can make some recommendations.  Carry at least three times more supplies than you think you'll need, just in case!  Carry half of your supplies with you in carry-on bags, and put the other half in your luggage, in case something gets lost.  If you can, pre-cut your pouches at home, so you won't have to carry scissors in your carry-on bags.

    Should you get down to Walt Disney World and need supplies, you can contact Padgett's Medical and Ostomy Supplies in St. Cloud at 407-892-3037. 

    Pouch changes can be done at the First Aid Stations in the theme parks.  The medical staff is not allowed to help with the changes, but can give you a comfortable, private area to do the changes yourself. 

    Bring extra clothes with you - anyone with children should do this, as I know my girls have had a need for complete outfit changes while in the parks before!

    Consult your own physician about anything else you might need to know before you go!  I know there is a great team of nurses at Arnold Palmer Hospital in Orlando, just in case of an emergency!

    Have a trip that is generously sprinkled with pixie dust!
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Meet the Panelist: Anna, New Jersey

My name is Anna and I am a wife, mother to three daughters and a son-in-law, and earning my Grandmom ears. I'm a law student and former teacher. I have planned vacations for all sorts celebrations, but really enjoy DVC vacations, helping military families, and assisting those with special dietary needs.    Learn More About Anna

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